I have to write about this, following some discussions.
I’ll start by saying that I obviously don’t have a problem with the concept of fundraising for cancer charities (having researched in a few places, now working at one and, y’know, being a human being). I’m not saying everyone who did it has missed the point, or shouldn’t have participated. I find the subject interesting; personally and professionally.
The questions I want to raise are generally more academic:
What is awareness? How effective are these campaigns/memes? What are the negatives, and do they matter?
What’s it about?
Some people woke up to find their Facebook feeds full of selfies – moreso than usual. I have to say I didn’t, rather my feed was peppered with criticisms of this mysterious selfie overload, mostly of women not wearing make-up and being proud of that. Apparently it is a big deal for some.
Under some posts came the clarification that the photo was “for cancer awareness”. Maybe they’d include a donation link/number to text to encourage people to give money to a relevant cause. Maybe they’d specify a charity. Lots of people seem to think it’s about breast cancer, although I find that odd, given it does not tend to manifest on one’s face.
According to this article (which I dislike mainly for its use of Facebook photos without stating that they sought permission), the idea took flight last year:
in September 2013… Escensual.com launched the nationwide DareToBare campaign for women across the UK to raise money and awareness for Breast Cancer Care. The campaign aimed to persuade women of all ages and walks of life to get sponsored to go to work, social activities or even a night out without their make-up on.
What motivated the company to do so is another question – as they sell cosmetics, focusing on their own product would make sense. It’s for a good cause. But between then and now something happened and it’s resurrected itself as #NoMakeupSelfie, flooding twitter and facebook with barefaced ladies (and some men getting their slap on, or posing bare-chested – men can get breast cancer, too – or people sharing images with basic self-check instructions, again usually for the breasts).
A friend wrote this post to mull over his feelings about it. I commented to link to a video about skin cancer that I saw on twitter that I thought was well-done.
I think it’s important to remember this wasn’t started by a charity. If it were, I’d be far more critical. I suppose because it wasn’t, that has led some to criticise individuals quite harshly – I wouldn’t advocate that. People are well-intentioned and the donations have come in at over £1m for Cancer Research UK alone now*.
Awareness is one of those current buzzwords, no one seems to be sure what it means. Certainly when I think about it and try to pin it down, I’m not sure either.
Are you aware of cancer?
I believe just about everyone is these days. However, what do you mean by “aware of”? Or by “cancer”? There are many things to consider:
- How to be self-aware; what to keep in mind about your body, to see a doctor if anything unusual happens.
- To take up screening invitations (cervical, breast, prostate, bowel etc). The earlier cancer is detected, the more likely treatment will be successful.
- How survival has improved over the last 60 years for all cancer types (see cancer stats).
- Some cancers are still very hard to treat and require more funding – including pancreas, brain, lung, oesophagus.
- Some cancers are now cured* often (mainly testicular cancer, some forms of skin cancer and now breast & prostate cancer, Hodgkin lymphoma). *In cancer talk by cured, we usually mean “disease-free survival for at least 5 or 10 years”.
- Why does cancer seem more common? We live longer now, we’re also fatter and more alcoholic, but it’s always been with us, and it’s not an exclusively human disease – most animals and some plants get it, too. Even dinosaurs did.
- What is cancer?
Cancer is hundreds of diseases under a single word umbrella. We have more than 200 types of cells and more than 70 organs, and even when looking at a specific one, like the breast for example, there are many “sub-types” of cancer in that location that are quite different and will require different kinds of treatment. It will take much more research to understand all of these diseases. While they have some things in common (cells growing out of control, mainly) they have important differences. That’s why we need new drugs and more basic research into cancer biology.
Sometimes awareness is very important. Breast cancer research and treatment may not be where it is now without the dedicated campaigns we’ve seen. Hard-to-spot and unusual symptoms and risky behaviours can be spotted/avoided more easily with clear education.
For example, HIV/AIDS became a serious public health issue in the UK in the eighties but public health campaigns hammered home the important messages about safe sex and drug use, and it had measurable positive effects, on other STIs too. But you do have to specify what you want people to be aware of, and that seems to be lacking in this case.
There are a lot of valid, important and interesting questions the campaign could raise. But, as far as I can see, it hasn’t really. So here we are. However, a simple, engaging campaign cannot take the place of a comprehensive education on a very complicated subject, and it never will. If it inspires people to learn more then that’s great. Here are a few things worth thinking about, if you are interested.
This is a complex topic that I can’t cover fully here but worth mentioning (follow Margaret McCartney‘s work for more). Screening has likely saved many lives – by detecting their cancers earlier, people can seek appropriate treatment, which will probably be less severe than if they wait and present at a late, advanced stage where their cancer may have spread (metastasised) and be uncurable or even without proven treatment options. Even then, there are clinical trials people can sign up to – oncologists should help people who wish to do so.
There are also valid questions about the potential harms of screening. Something that complicates cancer diagnoses is that we generally don’t know which pre-cancerous growths (for example, considering prostate or breast) will progress in someone’s lifetime become a serious and potentially deadly cancer, and which won’t. A favoured metaphor would be “how to separate the tigers from the pussy cats“. There is plenty of research into finding markers, indicators on cancer cells, that could tell us which patients we need to treat straight away, and who could just be monitored over time because they’re unlikely to progress.
The danger with treating everyone the same, whenever you find something suspect, is one of over-treatment. Diagnoses are extremely stressful. Cancer treatment is generally unpleasant. Not something you want if you can avoid it. So explaining risks to people, and what options they have, is a priority. Ultimately, it should be the patient’s choice if they wish, for example, to opt for surgery to mitigate their risk, or to wait and have regular tests. Many factors can affect our cancer risk; our genes, lifestyle, environment – it’s hard to say for sure what will happen when we still don’t fully understand this complex set of diseases. Long story short; do attend your appointments/take the tests when they arrive!
Focusing on women
Once again this appears to be using the worn-out idea that women’s appearances are very important and essentially public property. There are a number of issues around making a big deal out of not wearing make-up:
Loads of women don’t; why should those who do be considered “brave” to lose it for a photo, particularly in the context of cancer and all it entails; the whole exercise seems to shift the focus from something important to something relatively trivial; women are being told that they “look better” without (usually by men; suggesting how we appear to men is something important to be considered) or are self-deprecating saying they must look like zombies – this reinforces harmful ideas that women are out on public display, mainly for the “male gaze“, and should act accordingly, and that make-up (or lack of) is necessary to look “acceptable”.
A friend shared a lovely comment she saw on a post:
“Isn’t it ironic that below every “no make up selfie” there are comments saying “looking beautiful hun xx”. No they do not. Stop lying”
While not everyone tends to see the world through feminist lenses, these are valid issues that should be considered in the context of such a campaign. Women (teenagers in particular) are pressured to look a certain way, to buy and wear a lot of make-up; the whole thing can be wrapped up in insecurity. The demands placed on women of all ages by media and society are very real and need to be addressed.
Finally, all of the above ignores that fact that many women will wear whatever make-up they choose to simply because they enjoy it. As it should be. It’s nothing to do with what other people think – you can style your own face, not other people’s. Again, all having very little to do with cancer or awareness of it whatsoever. If someone has an explanation as to why the “dare to bare” idea is relevant and useful, do add in the comments.
Men have participated too because yes, men can get breast cancer (but the lifetime risk of developing breast cancer is 1 in 8 for women and 1 in 868 for men: stats) and of course many other cancers. Some are putting on make-up for a laugh or, apparently, going bare-chested but I’ve yet to see evidence of this. I have seen first-hand the “you look better without it, ladies!” type comments, though, which remind me of “smile, love!” and make me very angry. Men may well be fed up of being excluded from cancer fundraising drives, but in fact I’m told male-focussed ones have been tried – the problem is participation.
Other unofficial campaigns have had more sinister ulterior motives. One, encouraging women to go bra-less, seemed to have been created by a sleazy individual (or a few), with very little thought for the realities of breast cancer patients’ lives and perpetuating tolerance of assault. Some are purely useless and really are just silly vanity projects, like those that encourage women to post colours that describe their underwear, with no added explanation; educating nobody.
Edit: a friend of a friend of a friend (yes, the internet) has posted her selfie, and it actually is brave. To raise awareness of the fact that violence against women is far more common and accepted than most people like to think, she has posted the image of her bruised face – she was beaten for telling a guy in a club not to touch her without her permission, and told to “smile” with it. She’s raised >£1k for Oxford Sexual Abuse & Rape Crisis Centre. Good going.
Edit II: The Vagenda have a good post exploring this point further.
Family and friends
Another problem can be that this tactic can negatively affect patients and families. A huge influx of these images, which might remind people of loved ones lost, or that they personally wear make-up to paint on eyebrows lost to chemotherapy. There are some angry responses to be found.
Of course, it’s likely that anything tackling a tough subject will upset and offend some people. That doesn’t mean it’s automatically wrong, but it is important to be considerate – again this would be more pertinent if a charity were responsible. For example, a recent campaign by Pancreatic Cancer Action featured a young woman, Kerry, who wished to draw attention to the consistently poor survival rate and treatment options for pancreatic cancer by explain that she would wish she had breast cancer.
I thought this campaign was very well done. It made people stop and look, it made them question, and quickly provided answers. It educated people about the need for more research into pancreatic cancer, and better diagnostic techniques (it’s so hard to treat because it’s detected so late; being inside the body, it can become very advanced before any serious symptoms occur and then it’s too late – in this case awareness of the symptoms really can save lives).
But people also hated this campaign and vociferously complained. I had a long chat with a metastatic breast cancer patient on twitter who really didn’t like it because they felt it trivialised the difficulties of metBC patients. I didn’t see it that way, but encouraged her to let the charity know. While they received many complaints, the campaign also seems to have met some of its aims and they are following up with more ads.
What was really awful was that people abused Kerry personally, sending her horrible messages and berating her decision to be part of the campaign (PCA contacted patient groups for guidance before running it). She died in February – and I still wonder what the people who sent her those words were thinking, and what they feel now.
I’ve lost family and friends to cancer, most people have. My personal questions about these campaigns don’t tend to stem from that, but it is always worth considering what a range of people are likely to feel, and to be confident that potential benefits outweigh the harms.
Does it work?
Some have said most of the selfies they saw, beginning about 5 days ago, had no links or explanation whatsoever to accompany them. It was only after the criticisms began – focusing on those who failed to add relevant links or information as being lazy or purely narcissistic (well, most people are a bit) – that the donations and nominations and relevant links started to appear. So perhaps it wasn’t the campaign itself, but people’s irritation that it wasn’t working, that really made the difference… can we ever tell? Cancer charities like CRUK and PCA guiding people, creating some purpose and direction also helped.
One problem with uncoordinated campaigns is that their results can be difficult to keep track of. Without knowing what effect you’ve had, you can’t say whether something was successful and you can’t design better endeavours in the future. I hope to return to this idea in a post about a cancer charity linking with a well-known tabloid soon; link here when it’s done.
Will it have any lasting effect or will things go back to normal, or worse: below it, after the spike? How many people have donated for the first time? Will they continue? Has anyone learned about self-checks and will they do more after seeing friends participate in this? Have people posted photos in lieu of doing something genuinely useful (like people who say I’ll pray for you then do nothing of actual substance…)?
That last point is what drew the real criticism. If you don’t have a purpose besides showing people your face, you haven’t achieved anything. Even adding a link or naming a cancer type would help more than that.
A friend asked about doing something together to raise a bit of money. After talking I realised I am actually doing this year’s Thames Path Challenge in September with work (my leg is dodgy so I don’t run on it, before you ask…). So she will donate some money for that – all our fundraising efforts go to funding lab projects – and will be doing the Colour Run.
Don’t forget about other types of charity that support cancer patients and their families. Hospices need donations and volunteers. Marie Curie Cancer Care and Macmillan Cancer Support nurses provide invaluable support at the most stressful times and they are spread so thin. CLIC Sergeant and the Teenage Cancer Trust support younger sufferers and their families. There are many charities that focus on specific cancer types – you might choose to support one of these if you have been personally affected.
Many of them have charity shops so if you need to buy stuff you can donate at the same time! This is still my preferred route.
Otherwise, Cancer Research UK supports hundreds of excellent researchers across the country, who run labs dedicated to furthering our understanding of cancer biology, designing new drugs and surgical techniques, testing new treatments and running clinical trials, and helping to educate the public about cancer.
It’s very difficult to be fully “aware” of cancer, even when it’s staring you in the face, quite literally, as someone you love loses their life to it. It’s a huge thing, the Big C – but donations are important, wherever they come from.
As well as the donations, people are talking and hopefully learning – that’s definitely a plus.
*Edit: Eventually more than £8m was raised for CRUK.