1. Sorry about the awful title
2. Watch this space!!
Rhys explains everything here in this 19 minute video tweet, which I recommend you listen to, but he may be doing a shorter version soon for those with limited attention spans!
So for anyone who isn’t familiar with it, Crohn’s is a chronic inflammatory disease affecting the digestive tract. It’s not very well-understood at the moment, having a wide range of symptoms, severity and apparently significant environmental aspect.
Treatments generally aim to improve people’s quality of life – since Crohn’s currently cannot be cured.
As a result, there are many support networks for sufferers to share their experiences and help each other deal with the symptoms. This is commonplace for any chronic disease.
The issue Rhys (a Crohn’s patient himself) has picked up on centres around an ‘alternative treatment’ known as Miracle Mineral Solution (MMS). Looking around various sites it’s touted as a universal ‘detoxifier’, targeting bacteria and viruses alike, including HIV, malaria and even cancer. Edit: also being sold here in the UK.
In the forum we meet Chris, who explains that he’s having throat problems whilst taking LDN for his Crohn’s. Chris asks about MMS – could he take it to clear up his throat problems?
D Bergy tells him yes! Go ahead, but be careful with other medications.
MMS is not an approved treatment for anything, but I have found it to be one of the most effective methods of clearing unknown infections, and parasite removal in the intestinal tract
Starting to sound dodgy.
Give it some time and see what happens. The symptoms can be a good sign, but only if they are resolved at some point. The MMS wil likely clear it up, but you may have to swallow it to get to it.
Chris is advised to weather out negative side-effects and swallow the MMS.
it hurts too much to swallow even my own spit
Yet Chris is not advised to discontinue with MMS, but that it may be an allergic reaction to his LDN or some infection so ‘go slow’.
Rhys intervened to point out that the FDA has classified MMS as a health hazard because it’s an industrial bleach when made up as per the instructions.
Rhys tried to be careful with this, since the announcement was relatively recent and people may not have heard of it. Instead of being thanked he was personally and rudely attacked and has now been permanently banned from the site, despite being a fellow sufferer simply trying to warn people about this hazardous substance and call D Bergy out on giving dangerous medical advice online.
This site has acknowledged this warning yet still makes a lot of very dubious claims.
Everyone (surely?) knows you do not drink bleach!
This is very serious, considering the claims made about this product, due to the 1939 cancer act.
So, anyone suffering from Crohn’s or who knows people who do, please share the story and get the warnings about MMS around. This is no harmless patient choice, it is people really putting themselves at risk, gargling and drinking industrial bleach, encouraged by people who are (obviously) not qualified medical practitioners.
Updates as they come.
Edit: Have a look at PenguinGalaxy‘s post for a bit more chemistry-based background.